It often takes Myositis patients an average of 3-5 years to be accurately diagnosed. This statistic holds true for most rare diseases. I can report that this was also true in my case. I started having symptoms in early 2018, shortly after being horribly sick for about 12 weeks. Seemingly out of nowhere my eyes Read more

My heart and my jaw were somewhere on the floor of that small exam room when I finally came back to real life. “Does anyone in your family have ALS” she asked again. “Um, no. No, I don’t think so” I replied. “It’s either ALS or Myositis. We’ll know more for sure when the bloodwork Read more